Raising money and awareness for ERUK
Not enough people are aware
of the different forms
and seriousness of epilepsy
Adele-Marie, along with family and friends is raising money in memory of her mum, Ann Marie, who sadly passed away in November 2016.
“I am Adele-Marie. This year I, and some close family and friends will be doing various races to help raise awareness of epilepsy and funds for Epilepsy Research UK, as not enough people are aware of the different forms and seriousness of epilepsy.
We are doing this in memory of my amazing mum who we sadly lost in November due to epilepsy. My mum had epilepsy from 17 years of age, but still lived a normal life, worked, went on nights out as a young woman, married, had 3 children, went on holidays, took us on day trips. Epilepsy never ruled my mum’s life. If anything, my brothers and I went on more day trips during school holidays than most of our friends with mums who had cars. My mum was a very private person so no one other than family/ close friends of my mum’s knew that she had epilepsy.
As young children we were taught what to do if my mum had a seizure. From the age of 2 my older brother learnt how to call my Grandad to come over as my mum had colour coded the phone on each number, and my dad worked away from home so it was important we knew what to do in emergencies. As we grew older we learnt how to cope on our own if mum had a seizure. My older brother would put mum in the recovery position whilst my younger brother and I would help pass him pillows etcetera for mum, then help her to the sofa/bed once she’d come round from her seizure. She was the most amazing and strong woman I knew, who helped me become the woman and mum that I am.
So that’s just part of my mum’s life living with epilepsy that I wanted to share with you to make you all aware of how many people out there are in my mum’s position, with or without children, suffering with epilepsy and can be helped or cured so people don’t lose them like we’ve lost our mum , nana, wife , daughter and sister. Please please donate to Epilepsy Research UK . If it only helps a handful of people it’s a start !
Our sponsor page can be found here: www.justgiving.com/Adele-marie-Scott
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. ”
Adele-Marie’s brother, Nathen, continued the family’s fundraising efforts in January, 2020, in memory of their mum. Find out more on his JustGiving page here:
At a reception held on May 20th at the Royal Society to launch National Epilepsy Week, we announced grant funding of over £1 million across ten research projects all over the UK.
What an amazing day Team ERUK had at the 2019 London Marathon. 14 amazing runners taking on this iconic challenge for Epilepsy Research UK and a fantastic cheering squad
Do something amazing today and make a donation. Your money will go to support the pioneering research projects which help and support people with epilepsy