Epilepsy Research UK is delighted to welcome Nick Lench to the Board of Trustees. We are pleased to share the news of this appointment as part of #TrusteesWeek, an annual national event celebrating the vital contribution of trustees to the governance of charities.

With a wealth of genomic, industry and entrepreneurial expertise, Nick will support Epilepsy Research UK as it develops the Going Further strategy, a five-year plan to bring all elements of the epilepsy community together and drive increased investment in research.

Nick Lench is Chief Scientific Officer of Congenica, a digital health company enabling the rapid analysis and interpretation of genomic data, having co-founded the company in 2012. Prior to founding Congenica, Nick was previously Director of Genetics Services at Great Ormond Street Hospital for Children, London. Nick is an honorary Reader at the UCL Institute of Child Health and has over 25 years of academic, healthcare and commercial experience in medical genetics and genomics.

Nick said of the new appointment, “I am delighted and honoured to be appointed as a trustee of Epilepsy Research UK. As the only charity dedicated to driving life-changing research into epilepsy, it plays a vital role in promoting awareness and advancing our knowledge of the condition, as well as providing critical support to patients. Epilepsy remains a problematic disorder to diagnose and manage and often the aetiology cannot be determined. Genetics and genomics have an important role to play in addressing this challenge, enabling early and accurate diagnosis and ensuring that as many patients as possible receive the most appropriate treatment for their condition.”

Epilepsy Research UK Chair Professor Matthew Walker said, “We are thrilled to welcome Nick to our charity. He joins us with extensive experience and expertise – including directorial roles at the top of industry and over 25 years of academic, healthcare and commercial experience in medical genetics and genomics – which we are certain will prove invaluable in his position as trustee.”

Nick joins the charity at a pivotal moment as they prepare to embark on a UK Epilepsy Priority Setting Partnership with the other leading epilepsy charities. The UK Epilepsy PSP is a national survey collating the views of the entire UK epilepsy community. Information gathered from the landmark study will help identify and prioritise areas of epilepsy healthcare that can be improved by research and result in higher quality studies and increased investment.