A word picture with UK Epilepsy PSP highlighted in its centre


The UK Epilepsy Priority Setting Partnership (PSP) is a national survey collating the views of the entire UK epilepsy community. We are seeking the input of all those working in epilepsy and all those affected by epilepsy, including families, friends, carers and those bereaved by epilepsy. This is a unique opportunity for you to have your say in driving and shaping the future of research.

By participating in the survey, you are agreeing to have your priorities included in the UK Epilepsy Priority Setting Partnership. All submissions will be anonymous and any personal information will be kept confidential. Your research priorities will be analysed and published, but not linked to you or your organisation.

For more information, download our Frequently Asked Questions here, or contact Anna, Research & Involvement Officer, at to request the survey in another language or format.

Epilepsy affects everyone differently – we want to know what YOU consider to be the top priorities for research into epilepsy.

  • (🤔Need inspiration? Browse the word cloud above for ideas.)

  • We are asking for this information to ensure we have responses from across the entire epilepsy community. Your data is both necessary and beneficial to the success of this Priority Setting Partnership.
  • Please select all that apply.
  • Please select all that apply.
  • Please select all that apply.
  • We ask that you specify the epilepsy or associate condition charity so that we can provide our partners with feedback.
  • Once the survey responses have been collated, we will create a long list of all the identified research priorities not currently addressed by research. If you would like to be involved in the shortlisting process, or just kept up to date with the next steps of the UK Epilepsy PSP, please provide your title, name and email address below:
  • We would like to reassure you, we will never share your data. You can read our Privacy Policy below.
What happens next?
Privacy Policy



Please contact Anna, Research & Involvement Officer, at to request any of the following:

  • The survey in a different language
  • The survey in a different format (eg, paper copy or braille)
  • If you prefer to dictate your answers to the survey over the phone – a member of the Epilepsy Research UK team will assist