THE MOST IMPORTANT EPILEPSY RESEARCH SURVEY YOU WILL EVER COMPLETE

UK Epilepsy Priority Setting Partnership (PSP)
a national survey collating the views of the entire UK epilepsy community
 NOW OPEN!

We are seeking the input of all those working in epilepsy and all those affected by epilepsy, including families, friends, carers and those bereaved by epilepsy. This is a unique opportunity for you to have your say in driving and shaping the future of research.

Have you ever wondered why research on an area of epilepsy that affects you has not been a priority? Have you ever wondered how you could draw attention to this? Have you ever wondered how your opinion could make a difference?

If any of the above has occurred to you (or even if it hasn’t) then we want to hear from you.

TAKE THE MOST IMPORTANT SURVEY YOU WILL EVER COMPLETE

The survey should take no longer than 5 mins to complete.

WHAT IS THE UK EPILEPSY PSP?

This national survey will collate the views of the entire epilepsy community – people affected by epilepsy, their families, friends and carers, those bereaved by epilepsy, alongside healthcare professionals and epilepsy charities. The information gathered will help identify and prioritise areas of healthcare that can be improved by research and result in higher quality studies and increased investment.

WHY IS THIS THE MOST IMPORTANT SURVEY YOU WILL EVER COMPLETE?

It is time for change. Inequalities in research funding have meant progress for epilepsy has been slow. If we want to drive more investment, we must do as other health conditions have done, and provide clearly evidenced priorities to effect change. Your priorities will enable us to:

  • Carry out clinical research that matters most to people affected by epilepsy
  • Fund research based on evidenced priorities
  • Drive collaborations with associated condition charities
  • Generate the evidence needed to influence government and institutional funders to give us our fair share

If we don’t act now, innovations in the diagnosis and treatment of epilepsy will continue to lag behind other conditions. And that is why this is the most important survey you will ever complete.

TAKE THE SURVEY

Epilepsy affects everyone differently – we want to know what YOU consider to be the top priorities for research into epilepsy. We need your help to:

•   Identify areas where a need for more research exists
•    Ensure that the research we fund is directed by, and essential to, people affected by epilepsy
•    Provide indisputable, conclusive evidence to help drive greater research investment for epilepsy

Please join us. Let’s drive change.

TAKE THE SURVEY

ANY QUESTIONS? WATCH OUR VIDEO

TAKE THE SURVEY