Building on the results of their ERUK funding projects, the research team are currently conducting a 20-year review and follow up of over 1,000 children who had neurosurgical treatment for their epilepsy at Great Ormond Street Hospital since 2000. The aim is to better predict who will benefit from neurosurgery in terms of seizure freedom and to establish the longer-term impact of epilepsy surgery on cognition.
Rachel is one of many young people who, thanks to this ground-breaking research, is now seizure free and has achieved a life free from epilepsy. In February 2010, eight-year-old Rachel underwent surgery to remove a piece of tissue the size of a 20 pence piece from her brain. The family saw a dramatic instant transformation in Rachel. With the help of medication, speech therapy and a child psychologist, Rachel made a full recovery and has had no seizures since.
You can read Rachel’s story here.