Today we are supporting #SUDEPActionDay2021. The annual event brings together people and organisations to raise awareness of SUDEP – Sudden Unexpected Death in Epilepsy – and reflect on how lives are not only interrupted by epilepsy but sometimes tragically lost.
We join our charity partner SUDEP Action in calling for more conversations about SUDEP risk, raised awareness, and enhanced support, with the charity’s #Time2Change campaign. SUDEP Action has a tailored bereavement service that helps and empowers people after losing someone with epilepsy, through specialist bereavement support, counselling and casework, including support through investigations and inquests. Find out more on SUDEP Action’s website here.
There are 21 epilepsy-related deaths every week in the UK, and it is estimated that SUDEP accounts for around half of these. Unfortunately, we do not yet fully understand the underlying mechanisms of SUDEP or how to prevent epilepsy ending lives, but we do know that research holds the answer. That is why Epilepsy Research UK has invested over £1million in research to help prevent epilepsy-related deaths, including SUDEP.
Here are some examples of the vital research projects we have funded in this area: