Job Description

Job title: Research & Involvement Officer

Responsible to: Head of Research

Hours: Full-time

Salary: £25k-28k

Location: Flexible home-based working arrangements. Travel to our London office will be required for meetings and events.

Deadline for applications: 4pm on Monday 17th May


About Epilepsy Research UK
Epilepsy Research UK is the only UK charity exclusively dedicated to driving and enabling life changing, life saving research into epilepsy. Our vision is ‘a life free from epilepsy’. The research projects and fellowships we support are of the highest scientific merit and are subject to rigorous scrutiny, involving a Scientific Advisory Committee, independent expert opinion, interviews and peer review. The pioneering clinical research discovers was to advance the medical care and management of people living with epilepsy and the lab-based scientific projects investigate causes and methods for improved diagnosis, treatment and prevention. We aim to support research that provides help for today and hope for tomorrow.

In response to our recently published #ALifeInterrupted report, we launched the SHAPE NETWORK, aiming to build the UK’s largest ever epilepsy patient population to influence and shape research. The SHAPE NETWORK will bring together people committed to working towards a life free from epilepsy, from people affected by the condition to scientists and clinicians driving innovations. SHAPE NETWORK members will help shape research by:

  • Sharing the impact of the condition on their lives
  • Helping Epilepsy Research UK choose the best research to fund
  • Planning and prioritising research areas to focus on
  • Using experiences to support research development by informing study design and implementation


Overall Purpose of Role
As Research & Involvement officer you will be responsible for coordinating the operational activities involved in the running of the SHAPE NETWORK and Research Priority Study. The role will also involve administrative duties associated with Epilepsy Research UK’s annual grant round and research processes. The Research & Involvement Officer will work closely with the Head of Research and will work with a broad range of stakeholders including people affected by epilepsy and researchers. This is a newly created position and an exciting opportunity to join us as we develop our strategy to ensure people affected by epilepsy are at the centre of the research we fund.

Principal Accountabilities

  • Coordinate all operational activities associated with the running of the Shape Epilepsy Research Network and steering group. This will include stewardship of Shape members, sharing of research involvement opportunities, and liaising with researchers to help ensure meaningful research involvement
  • Working with the Epilepsy Research UK team, Shape Network, clinicians and other stakeholder groups to provide the operational support for a Research Priority Study to identify key areas of research for people affected by epilepsy
  • Administration of research activities including Epilepsy Research UK’s annual grant round, monitoring of ongoing funded grants, monitoring grant impact
  • Using outcomes from ERUK-funded research to help create evidence-based communications for website and publications including annual reports and Focus Newsletter
  • Assisting with the organisation of Epilepsy Research UK’s biennial International Expert Workshop


Essential criteria

  • Educated to degree level, ideally in science or a health-related discipline
  • Excellent written, verbal, presentation and communication skills,
  • Ability to communicate and build effective working relationships with individuals from a broad spectrum of backgrounds
  • Ability to plan and prioritise own workload, manage conflicting priorities and meet tight deadlines
  • Knowledge and understanding of research processes
  • Ability to read, understand, and summarise complex scientific papers and communicate to a lay audience
  • Excellent interpersonal skills, demonstrable evidence of effective team-working and ability to take initiative or to support colleagues, as necessary
  • Excellent organisational skills
  • A passion for patient and public involvement in research

Desirable criteria

  • Knowledge or experience of working in Patient and Public Involvement (PPI)
  • Experience of working effectively in a small team to deliver big results
  • Previous experience working at a medical research charity
  • Experience conducting research
  • Understanding of the principles of peer review


To apply, please send a cover letter outlining your interest in and suitability for the role, along with an up to date curriculum vitae to [email protected].


Shortlisting decisions: Week commencing 24th May

Interviews (held virtually): Week commencing 31st May

If you have any questions, please contact Caoimhe Twohig-Bennett.