Welcome to the #ERUKResearchBlog. Does scientific language or research jargon sometimes leave you feeling a little baffled and bemused? Well, we’ve asked the experts to break things down, show us ‘behind the research curtain’, and share some stories that will inspire and engage us all.
If you would like to see a research topic discussed here, please get in touch.
Rebecca joined our SHAPE NETWORK Steering Group to help develop the strategy for the network. Here, Rebecca explains why she wanted to be part of this network and why it’s so important for those affected by epilepsy to become involved in research.
One year ago, we created the SHAPE NETWORK – the largest ever community of people affected by epilepsy dedicated to influencing research. This month, we will look at why research needs people with epilepsy to get involved, and the difference the network will make.
Dr Charlotte Tye was awarded the Epilepsy Research UK & Autistica Fellowship in 2020 to identify predictors of autism in infants with epilepsy. Here, Dr Tye explains how this work could help improve long-term quality of life for those affected by both conditions.
Dr Colin Reilly shares some of the key findings from a vital new research project commissioned by Epilepsy Research UK, Autistica and Young Epilepsy and highlights important research questions for the future.
Professor Sameer Zuberi discusses the impact of the 2019 Epilepsy Research UK International Expert Workshop on epilepsy and neurodevelopmental disorders and how far research has come in such a short space of time since.
Concluding this month’s theme of Epilepsy Surgery, we held a Research Roundtable webinar, featuring fascinating talks from the experts and people with lived experience who featured on the Research Blog this month
Professor Torsten Baldeweg and his team were awarded an Endeavour Project Grant in 2011 to investigate the potential impacts of surgery in children. Here, Professor Baldeweg explains the impact this research has had in the field of paediatric epilepsy surgery.
Rachel started having seizures when she was two years old. As she grew up, they became more frequent, and the drugs she was taking were failing to control them. In this Research Blog, Rachel shares how epilepsy surgery gave her a chance at living seizure-free.
This month on the Research Blog, we’re looking at how world-leading research funded by Epilepsy Research UK has helped to improve surgery, and one person’s remarkable story of the difference it can make.
Prof Sarosh Irani and Prof Arjune Sen, from the University of Oxford, explain how their research group helped provide evidence for a link between autoimmunity and specific types of epilepsy, leading to new, targeted treatment options.
Dr Frances Wiseman was awarded an Epilepsy Research UK Pilot Grant in 2013 to investigate epilepsy in Down syndrome with Alzheimer's disease. In this Research Blog, Dr Wiseman provides us with an update on her research...
At the age of 24 Anna suffered a head injury when her car was hit by a careless driver, developing epilepsy as a result of the collision. In this Research Blog, Anna discusses her epilepsy journey from seeking diagnosis to the various impacts of the condition on her life.
Epilepsy can be caused by many factors, including other medical conditions and brain injuries. This month on the Research Blog, we will look closer at acquired epilepsy, and how our research is helping the full spectrum of people living with the condition.
Throughout May we have been going back to basics to look at how and why we fund research into epilepsy. We also celebrated National Epilepsy Week, and announced the new research projects we’re funding in this years’ Research Awards.
In our final Research Blog of National #EpilepsyWeek, our trustee Joe Brice reflects on this year’s theme - #BeyondCovid – and how Epilepsy Research UK is going further than ever before for people living with epilepsy
In this Research Blog, we learn about Epilepsy Research UK & University of Edinburgh’s Doctoral Training Centre (DTC) from lead researchers Professor Cathy Abbot and Professor Richard Chin. The research projects will focus on improving outcomes for childhood onset epilepsies, from mechanisms to treatment.
Dr Gareth Morris was awarded this year’s Emerging Leader Fellowship for his project exploring an exciting new area of gene therapy. Here, Dr Morris explains his project in more detail, referencing to none other than Batman, and what he hopes it will achieve for people with epilepsy.
Professor Andrew Trevelyan and Dr Rhys Thomas are the lead researchers of this new Epilepsy Research UK Newcastle University Doctoral Training Centre. Here, we hear more about the projects and what Professor Trevelyan and Dr Thomas hope to achieve through these DTC’s.
Dr Tim Tierney was awarded the joint Epilepsy Research UK & Young Epilepsy Fellowship Award for his project aiming to make bedside brain imaging a reality. In this Research Blog, Dr Tierney discusses his career journey as a researcher so far, including the factors behind the development of this vital new fellowship project.
The Association of Medical Research Charities is a research charity membership organisation. Here, CEO Aisling Aisling Burnand, articulates the economic value of charity-funded research and shares some of the work they are doing with the government to represent charities like Epilepsy Research UK.
In the build-up to National Epilepsy Week, this month we’re going back to basics to look at why and how we fund research into epilepsy. This week, we delve into a key part of how we work – collaborating with other organisations.
Prof Mark Richardson and PhD student Andrea Biondi's ERUK-funded project is investigating the effectiveness of new seizure forecasting technologies for home use. Here, Andrea explains how this work has great potential to give people more control over their epilepsy.
This week’s Research Blog is from ERUK Trustee Dr Anne Coxon. Dr Coxon's daughter Katherine, has a diagnosis of Lennox-Gastaut Syndrome, a severe form of epilepsy. In this piece, Anne shares their story and the role research has played along the way.
Concluding the month's theme, we held a Purple Day Research Roundtable webinar, featuring fascinating talks from the experts and people with lived experience who featured on the Research Blog this month.
Emerging Leader Fellow Dr Gabriele Lignani is investigating the use of gene therapy and its potential to treat epilepsy. But what exactly is gene therapy and what does it mean for people with epilepsy?
Clinical geneticist Dr Kate Baker shares the progress genetic testing has made in the last 10 years, including her own research into a specific genetic mutation, and explains why more research is still needed...
Dr Charles Steward works in the field of human genomics - the study of a person’s entire DNA. In this Research Blog, Dr Steward discusses his journey in the field of genomics and how this knowledge can be transformative in diagnosing, treating and preventing health conditions.
Craig discusses his journey from being diagnosed at a young age with a form of epilepsy with a probable genetic basis, to the challenges he has had to overcome and his hopes for the future of research.
To mark International Day of Women and Girls in Science, Epilepsy Research UK is celebrating all the incredible women driving research into epilepsy. In this Research Blog, Epilepsy Research UK Trustee Professor Stephanie Schorge discusses her journey climbing the scientific ladder as a woman.
Bec Hanley is an expert in Patient and Public Involvement (PPI) in charities and facilitates the Charities Research Involvement Group. In this Research Blog, Bec discusses the value of PPI in charity-funded research and its huge potential impact.
This month on the Research Blog, we’ll be focussing on the importance of participating in research, often referred to as Patient & Public Involvement (PPI). But what is PPI? And why do we need more of it in epilepsy research?
Dr Sukhvir Wright explains how an Epilepsy Research UK Emerging Leader Fellowship in 2016 has helped researchers gain an understanding of how autoimmune-associated epilepsies work, as well as aiding the search for targeted treatments.
In this week’s Research Blog, we speak to Young Epilepsy 'Young Rep' Annie. Annie shares her story of what it is like growing up with epilepsy, and the impact it is still having on her as a young adult.
We hear from our final Innovations in Healthcare awardee, Dr Rhys Thomas, who tells us how his project aims to increase awareness of SUDEP by rolling out an award-winning educational app and producing information videos featuring people with lived experience of epilepsy.
Professor Sameer Zuberi discusses his Innovations in Healthcare project, which will assess how a secure video sharing platform has improved services in 15 hospitals, and how the platform could vastly improve diagnosis and care for people with epilepsy.
This week on the blog, Paola discusses how treatments were able to control her seizures until she started thinking about her future and the prospect of having a family. Paola also shares why research into epilepsy is important to her.
This month on the ERUK Research Blog, we’ll be looking in more depth at treatments for epilepsy. We’ll hear more about why getting the right treatment matters so much, and how research will continue to help people live a life free from epilepsy.
This week, we have handed over our research blog to parents participating in the MICE Study Patient and Public Involvement (PPI) Group. We asked the group to provide some insights into participating in research to help anyone considering getting involved in ERUK’s SHAPE EPILEPSY RESEARCH NETWORK.
Ahead of SUDEP Action day this Friday 23rd October, this week’s blog is by Dr Michalis Kassinopolous who is working on a project aiming to identify risk factors for SUDEP (Sudden Unexpected Death in Epilepsy). Let's find out how...
On the blog this week, ERUK supporter Claire shares her story as part of our #ALifeInterrupted campaign. Here she discusses the interruptive and disruptive impact of epilepsy, and the effect it has had on her life and motherhood.
To bring this months theme of epilepsy diagnosis to a close, we caught up with ERUK Endeavour Project Grant Awardee, Prof Khalid Hamandi who explains the importance of pinpointing the source of seizures after diagnosis, in order to improve treatments.
In this blog, Dr Charlotte Tye tells us about her current study which aims to investigate the impact of the COVID-19 pandemic on families of children with rare genetic and neurodevelopmental disorders, many of whom also have epilepsy.
ERUK Change Maker series: In this blog, Dr Gashirai Mbizvo discusses how his ERUK-funded research in Scotland discovered that almost 80% of epilepsy-related deaths among adults are potentially avoidable, and how this work is helping to change policy and clinical practice.
ERUK Change Makers Series: As part of the blog series and to coincide with the release of the Cumberlege Review, Dr Bromley discusses the journey in recognising the risks associated with sodium valproate, and how patient campaigning and research brought about change.
ERUK Change Makers Series: To launch this blog series, ERUK Director of Research and Innovation Dr James Pickett discusses the impact of COVID-19 on our research, and brings us the exciting news of an ERUK urgent funding call launching today...
Dr Gareth Morris recently completed an ERUK Explore Pilot Study alongside Prof Stephanie Schorge, but the results were not as expected. In this blogpost Dr Morris discusses the values and learnings from research that has unforeseen results.
Vice Dean of Neuroscience at King’s College London and ERUK Trustee Professor Mark Richardson discusses some of the incredible recent advances in neurotechnology and the work ERUK is doing to accelerate these innovations.