ERUK works with research organisations that focus on conditions associated with epilepsy to co-fund research.
Following Autistica’s 2016 ‘Personal Tragedies, Public Crisis’ report which highlighted shocking rates of early death in autistic people. The charity hosted a global summit on autism and epilepsy with international research leaders and experts by experience. This was followed in early 2019 by Epilepsy Research UK’s International Expert Workshop on Epilepsy and Neurodevelopmental disorderswhich also brought together world leading experts, including Autistica.
These meetings presented the latest research and seeded new research ideas and collaborations, and as a result, epilepsy in autism has been made a research priority for both charities.