Sue Usiskin MBE founded the first Epilepsy Counselling Service at the National Hospital for Neurology & Neurosurgery, Queen Square, London in 1989 which she ran for over 30 years. She saw patients who were referred from all over the UK with wide ranging problems such as psycho-social, educational, family and other issues.

She has spoken widely on issues relating to living with epilepsy on radio and television and has contributed to many publications. She has played an important role in working parties and consultation committees including The Royal College of Physicians, The Joint Epilepsy Council, The Cochrane Collaboration and Scientific Advisory Committee to the Epilepsy Research Fund (ERUK). She was awarded the Bateman Prize in 1992 and was made an International Ambassador for Epilepsy by the International League Against Epilepsy in 1995. In 2007 she was made an MBE for services to those with epilepsy. In 2019 Sue was elected to the Board of Trustees of Epilepsy Research UK.