News

Webinar Invitation: Epilepsy in Pregnancy 11am, Monday 31st January 2022 Register for free here Join us for our first Research Roundtable webinar of 2022 when we’ll be hearing [...]

Is getting fit on your New Year’s resolution list? Why not get fit AND fight for neuro research with this year’s #Brainathlon! Our superstar supporters raised over £70,000 for neu [...]

FIVE MINUTES is all it takes for you to make a huge difference this year and help shape the future of research into epilepsy. Let’s drive change in 2022 – take the UK Epilepsy Pr [...]

Children who are exposed to certain prescribed medications in the womb can be at risk of poorer physical or neuro development. Over the past decade, research funded by Epilepsy R [...]

Looking for a way to burn off all those mince pies while supporting life changing, life saving research into epilepsy? Check out our handy Top 10 events to give you some inspirati [...]

The Epilepsy Research UK team will soon be stepping away from our screens and leaving our virtual offices for the Christmas break. But before we sign off, we just want to say an [...]

Epilepsy Research UK has been awarded a grant to support research delayed by COVID-19 for some of our early career, next generation researchers. This funding is thanks to tireless [...]

DONATE NOW Getting the right diagnosis for our son wasn’t an easy process. Archer had been making odd movements since he was around four weeks old, mostly when he was falling as [...]

People diagnosed with epilepsy today will encounter many of the same challenges faced by previous generations. To overcome these challenges once and for all, we need new ideas an [...]

DONATE N0W A personal message from our President, Professor J Helen Cross OBE "Every day, as a Paediatric Neurologist, I witness the devastation and lifelong impact epilepsy can [...]

Join us for our final Research Roundtable webinar of 2021 when we’ll be hearing from research experts and people with lived experience on the topic of epilepsy in childhood. Ther [...]

THE MOST IMPORTANT EPILEPSY RESEARCH SURVEY YOU WILL EVER COMPLETE UK Epilepsy Priority Setting Partnership (PSP) a national survey collating the views of the entire UK epilepsy [...]

The Association of Medical Research Charities (AMRC) – of which Epilepsy Research UK is a proud member – have today released a new report demonstrating the ways medical research c [...]

The National Institute for Health and Care Excellence (NICE) has released the draft updated national guidance and advice for epilepsy, which covers the diagnosis and management of [...]

We first found out I had epilepsy when I was four years old. I was diagnosed with juvenile absence epilepsy but was too young to understand what that meant. I had my first grand [...]

Epilepsy Research UK is delighted to welcome Nick Lench to the Board of Trustees. We are pleased to share the news of this appointment as part of #TrusteesWeek, an annual national [...]

Need some inspiration this Christmas? Look no fir-ther! From festive fun runs to Christmas cards, lottery tickets to Christmas jumper days - there are plenty of ways to get creati [...]

There are around 112,000 children and young people in the UK living with epilepsy, often linked with other neurological conditions. On the #ERUKResearchBlog this month, we’ll be [...]

The giving season is almost upon us! If you’re looking for a way to give back this Christmas, look no fir-ther… We have places in some fantastically festive fun runs throughout De [...]

Ride London has been a staple in the charity events calendar since its launch in 2013. Celebrating the legacy of cycling created by the Olympics in 2012, the prestigious cycling [...]

Epilepsy Research UK is delighted to share an opportunity for our SHAPE NETWORK members to be involved in our annual research funding process. This year we have developed an addit [...]

Last week saw our second collaboration event with Brain Research UK and Brain Tumour Research – the #BrainathlonHalf! Individuals and families across the UK took part in the virtu [...]

The Government’s three-year Spending Review and 2021-22 Budget was presented yesterday by the Chancellor of the Exchequer, Rishi Sunak MP. The Spending Review usually takes place [...]

Since 2003, longstanding supporters Farnell Electronics have held an annual golf day in aid of Epilepsy Research UK. This summer they bid a fond farewell to Tracey Hall, who has b [...]

Looking for a fun way to raise vital funds for research into epilepsy? Look no further because events are well and truly back!  Whether you want to run, ride or jump out of a plan [...]

Today we are supporting #SUDEPActionDay2021. The annual event brings together people and organisations to raise awareness of SUDEP – Sudden Unexpected Death in Epilepsy – and refl [...]

We are delighted to announce a new series of seminars, hosted and chaired by the Epilepsy Research UK Fellows. Each seminar will focus on a different theme and will cover the very [...]

Professor Cathy Abbot is joint lead researcher at our new Doctoral Training Centre at the University of Edinburgh. In this piece, Professor Abbot explains how these new ‘PhD hubs’ [...]

I first heard about the Epilepsy Research UK SHAPE NETWORK on Facebook and signed up right away. I am excited to be a member as it offers a great opportunity for people living wi [...]

It's that time already! Our 2021 Christmas card range is now available. They flew off the shelves last year, so order yours today to avoid disappointment! But wait—there’s myrrh! [...]

Today we’re celebrating one year since we launched the #ALifeInterrupted campaign, to highlight the disruptive, interruptive impact of epilepsy and call on people affected to hel [...]

One year ago, we created the SHAPE NETWORK – the largest ever community of people affected by epilepsy dedicated to influencing research into the condition. On the #ERUKResearchBl [...]

Events are well and truly back! In the last month, we’ve been lucky enough to meet some of our superstar supporters in person at the Great North Run and the London Marathon. But [...]

A massive thank you from our Head of Events, Mehreen Syed: This year’s London Marathon was a long time coming (18 months and 3 postponements due to you know what) but the day did [...]

Today sees the publication of the ‘Autism and Epilepsy: Laying out the Evidence’ report, a first of its kind investigation into the co-occurrence of epilepsy and autism commissio [...]

Read the full newsletter here A message from Maxine Smeaton, Epilepsy Research UK CEO: It’s hard to believe it’s a year since we launched the #ALifeInterrupted report and campai [...]

Researchers, clinicians,  health professionals and scientists working in the field of epilepsy came together this week for the International League Against Epilepsy (ILAE) Annual [...]

The Canadian Epilepsy James Lind Alliance Priority Setting Partnership (PSP) have today published their Top 10 Research Priorities for epilepsy. The Canadian Top 10 initiative was [...]

Toni Hodges was just 37 when she passed away on 13th September 2020, after suffering a seizure and never regaining consciousness. She had lived with epilepsy for 25 years, but nev [...]

Join us for the next in our series of Research Roundtable webinars when we’ll be hearing from research experts and people with lived experience on the topic of epilepsy and autis [...]

Epilepsy Research UK is proud to announce our 2021 London Marathon team – and what a brilliant and varied team it is! There are new faces, seasoned supporters, established runner [...]

Epilepsy Research UK has today announced the launch of a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to establish the future research priorities of epilepsy. The [...]

Gifts in Wills left to Epilepsy Research UK play a vital role in securing the future of research into epilepsy. They enable us to provide help for today through clinical research [...]

After a long hiatus, the #TeamERUK cheer squad were thrilled to be back on official duty yesterday, supporting our fantastic runners at one of the most iconic races in the country [...]

This Sunday sees the return of “the World’s biggest and best half marathon” – Newcastle’s famous Great North Run. Every September, Epilepsy Research UK is fortunate to have teams [...]

Choosing to have surgery in an attempt to control my epilepsy was a scary decision my family had to make, but little did we know how life changing it would be. Thanks to ground-b [...]

Neurodevelopmental conditions such as autism are very common among people with epilepsy. But despite the strong link, we know little about the common underlying causes and how to [...]

That's right - it's the highly anticipated return of the Brainathlon! Following the phenomenal success of the first-ever Brainathlon earlier this year (which saw super support [...]

Join us for the next in our series of Research Roundtable webinars when we’ll be hearing from the experts and people with lived experience on the topic of epilepsy surgery. Somet [...]

The effective dissemination of research findings is essential if we are to share learnings and outcomes that will influence other researchers work or influence policy and practice [...]

Sometimes epilepsy does not respond to medication and in some cases, surgery may be considered as a promising treatment option with the potential to control seizures. But surgery [...]

Epilepsy Research UK supporters across the country are taking on the #6forthe600 challenge to help fund vital research for the 600 people diagnosed with epilepsy every week in the [...]

This week, one year after the Cumberlege review was published, the government has shared their full response to the recommendations outlined in the report. The Cumberlege review ( [...]

Join us for the next in our series of Research Roundtable webinars when we’ll be hearing from the experts and people with lived experience on the topic of epilepsy diagnosis. Get [...]

This year has been testing for Epilepsy Research UK. As we excitedly embarked on implementing our ambitious strategy Going Further, we never thought the world would come to a [...]

Getting the right epilepsy diagnosis can be challenging and can take many months or even years. This month on the #ERUKResearchBlog, we’re looking at why it’s so important that ev [...]

Epilepsy Research UK is thrilled to be the chosen beneficiary charity of an upcoming auction of a painting by Sir Kyffin Williams (1918-2006). The portrait entitled "Willie" is t [...]

Epilepsy Research UK is delighted to share the news that ERUK Fellow Dr Gabriele Lignani has received the International League Against Epilepsy (ILAE) Harinarayan Young Neuroscien [...]

Research into epilepsy has experienced significant delays due to the pandemic. Epilepsy Research UK has therefore decided to focus this year’s grant round on funding research [...]

You can STOP lives being interrupted by epilepsy and help us provide help for today and hope for tomorrow to families like Leah and Jack.  MAKE A DONATION When my son Jack was [...]

Join us for the next in our series of Research Roundtable webinars when we’ll be hearing from the experts and people with lived experience of acquired epilepsy. Epilepsy can be [...]

Epilepsy Research UK is pleased to announce we have passed the Association of Medical Research Charities (AMRC) Peer Review Audit. To retain our membership, we are required to sub [...]

NHS England has sent out a letter to all women and girls in England aged 12-55 who are currently prescribed sodium valproate. The letter contains important information and reminde [...]

We are deeply saddened to hear of the death of Alan Richens, a founding Trustee of the Epilepsy Research Foundation in 1991, which later became Epilepsy Research UK.  Alan gave an [...]

Epilepsy can be caused by many factors, including other medical conditions and brain injuries. This month on the #ERUKResearchBlog, we will look closer at acquired epilepsy, and h [...]

From health, education and employment to family and friends, the pandemic has impacted every aspect of life and whilst many of us are looking forward to a degree of normality, for [...]

Gill and Gordon Parry, supporters of epilepsy research for 30 years, share their story today for the first time... Maxine, our Chief Executive: I recently had the great privil [...]

Pre-order your #ALifeInterrupted t-shirt here As part of National Epilepsy Week, we are delighted to announce a collaboration with UN:IK Clothing - a streetwear company supporti [...]

Epilepsy Research UK is delighted to announce funding for a further four projects, valued at £1.25 million as part of our annual research awards. This year, the pandemic made us [...]

Forget the BAFTAs, Epilepsy Research UK is hosting the most spectacular showbiz event of the year. Join us this Sunday evening for a very special ceremony to reveal the recipient [...]

With just a week to go, we thought we’d share with you a sneak preview of what we have planned this year… TOP SECRET EVENT COMING SOON Stay tuned later this week for an exciti [...]

In the build-up to National Epilepsy Week, this month on the #ERUKResearchBlog we’re going back to basics to look at why and how we fund research into epilepsy. This week, we delv [...]

Epilepsy Research UK currently has two vacancies to join our team and we are delighted to share these opportunities with our community. The opportunities are described below along [...]

The first-ever #Brainathlon drew to a close on Sunday after a fantastic week of fundraising across the UK. The virtual walk, run and climb event was the first of its kind and a co [...]

Epilepsy Research UK invites you to the next in our series of live Research Roundtable webinars. This month we’ll be discussing how research is improving seizure control. We'll h [...]

A report has been published which shows the impact of the COVID-19 pandemic on people with neurological conditions and the key services they rely on. The Lessons learnt from the C [...]

Epilepsy Research UK is joining charities across the UK to celebrate the legacy of Captain Sir Thomas Moore by asking our supporters to take part in the Captain Tom 100 Challenge. [...]

This week the British Neuroscience Association (BNA), will host its fifth Festival of Neuroscience.  Epilepsy Research UK (ERUK) is proud to be a Partner Society for the festival [...]

Each year, we’re lucky enough to have a team of dedicated supporters raising money for research at the world’s biggest half marathon: the Great North Run. We’re now on the hunt f [...]

To accelerate progress in epilepsy research, we need to know we are directing our efforts to where they will have the most impact. Our SHAPE NETWORK questions were designed to ide [...]

ERUK-funded researcher Professor Sameer Zuberi featured on BBC Breakfast News over the weekend to discuss vCreate Neuro – a secure video sharing platform for patients or carers an [...]

How Research Is Pioneering Ways For Everyone To Live Seizure Free This month on the #ERUKResearch Blog we’ll be focusing on controlling seizures. We’ll hear about the impact of un [...]

You can stop lives being interrupted by epilepsy. Give a gift to help more people like Grace today. Make a donation How Grace's life was interrupted My daughter Grace was four [...]

All week we’ve been asking our supporters to dress their beloved pets (or willing family members, partners, or friends) in purple and help raise vital funds for research this PUR [...]

Epilepsy Research UK invites you to the next in our series of live Research Roundtable webinars. This month we’ll be discussing epilepsy and genetics. We'll be hearing from the e [...]

It’s one of the most important days in our community calendar and a time when people across the world come together to raise epilepsy awareness. PURPLE DAY takes place on FRIDAY [...]

Epilepsy Research UK is delighted to share an exciting opportunity for members of our SHAPE NETWORK. We are inviting applications to join a new steering group of people with live [...]

This week Epilepsy Research UK is supporting #BrainAwarenessWeek – a global campaign organised by the DANA Foundation which aims to increase public awareness and support for brain [...]

Epilepsy interrupts the lives of ordinary, extraordinary people.  It’s invisible, unpredictable and frightening.  The current lack of investment in epilepsy research is staggering [...]

Epilepsy Research UK is pleased to be joining our #TeamBrain partners to mark Brain Tumour Awareness Month. The national campaign runs throughout March to raise awareness of the c [...]

To celebrate #InternationalWomensDay, we’re shining a spotlight on some of our most viewed Research Blogs from clinicians, researchers, and people with lived experience of epileps [...]

I was first diagnosed with epilepsy in 1982. It took a while to get the dosage right but we got there and for 20 years the drugs did their job – until August 2017, when I had a s [...]

This month on the #ERUKResearch Blog, we’ll be focussing on the genetics of epilepsy, and how identifying genes linked to the condition could help diagnose and treat it more effec [...]

The first report from the valproate registry has been published, giving a better understanding of the care of women prescribed sodium valproate and providing a further basis to co [...]

Were you one of the lucky ones who bagged a place in the 2021 London Marathon ballot? Or are you on the hunt for a charity space? Whether you’re looking to tackle the official r [...]

This month on the #ERUKResearchBlog, we’ll be focussing on the importance of involving people with lived experience in the development of research. This is often referred to as Pa [...]

Epilepsy Research UK invites you to a live Research Roundtable on epilepsy in childhood. Join us to hear about some of the exciting research taking place across the UK on the [...]

ACCELERATING THE PACE OF DISCOVERY Arriving a little later than usual due to the constraints of lockdown, but today we are delighted to share our Annual Review and Accounts for 20 [...]

A national study has uncovered that SUDEP (Sudden Unexpected Death in Epilepsy) occurred almost twice as often among women who were pregnant between 2016 and 2018.  Epilepsy is a [...]

On Friday, the Medicines and Healthcare products Regulatory Agency (MHRA) published a review of the risks associated with commonly prescribed antiepileptic medication during pregn [...]

This month on the #ERUKResearchBlog, we’ll be focussing on epilepsy in childhood and how the experiences of young people can shape the research needed to tackle the biggest challe [...]

Looking for a new year challenge to get you fired up and fighting fit? Well, Epilepsy Research UK may have just the thing! Join us this April for the first-ever Brainathlon - a [...]

And there goes 2020… can’t say we’ll miss it! The Epilepsy Research UK team will soon be stepping away from our screens, putting down our phones, and leaving our virtual offices [...]

Over on the #ERUKResearch Blog this month, we’ll be discussing the three newly funded Innovations in Research projects. We’ll be looking at the ways in which the funded researcher [...]

Epilepsy Research UK is proud to announce three new research projects to support Innovations in Healthcare Research. The COVID-19 pandemic has caused considerable challenges in [...]

Seizures haven’t stopped. Neither have we.  And thankfully, neither have you. So, that was Black Friday. Did you find a bargain? Or are you a fully signed up member of the Ban Bla [...]

Pardon the interruption... but have you seen our #ALifeInterrupted films yet? Doug and Ava’s stories have already been featured in leading industry publications Creative Review an [...]