WHY IS THIS THE MOST IMPORTANT SURVEY YOU WILL EVER COMPLETE?
It’s time for change. The UK Epilepsy PSP is a national survey collating the views of the entire UK epilepsy community including people living with the condition, families, friends, carers, those bereaved by epilepsy and healthcare professionals.
Inequalities in research funding have meant progress for epilepsy has been slow. If we want to drive more investment, we must do as other health conditions have done and provide clearly evidenced priorities to effect change. Your priorities will enable us to:
- Carry out research that matters most to people affected by epilepsy
- Fund research based on evidenced priorities
- Drive collaborations with associated condition charities
- Generate the evidence needed to influence government and institutional funders to give us our fair share
If we don’t act now, innovations in the diagnosis and treatment of epilepsy will continue to lag behind other conditions. And that is why this is the most important survey you’ll ever complete.