FIVE MINUTES is all it takes for you to make a huge difference this year and help shape the future of research into epilepsy. Let’s drive change in 2022 – take the UK Epilepsy Priority Setting Partnership (PSP) survey today.

TAKE THE 5 MINUTE SURVEY

WHY IS THIS THE MOST IMPORTANT SURVEY YOU WILL EVER COMPLETE?

It’s time for change. The UK Epilepsy PSP is a national survey collating the views of the entire UK epilepsy community including people living with the condition, families, friends, carers, those bereaved by epilepsy and healthcare professionals.

Inequalities in research funding have meant progress for epilepsy has been slow. If we want to drive more investment, we must do as other health conditions have done and provide clearly evidenced priorities to effect change. Your priorities will enable us to:

  • Carry out research that matters most to people affected by epilepsy
  • Fund research based on evidenced priorities
  • Drive collaborations with associated condition charities
  • Generate the evidence needed to influence government and institutional funders to give us our fair share

If we don’t act now, innovations in the diagnosis and treatment of epilepsy will continue to lag behind other conditions. And that is why this is the most important survey you’ll ever complete.

TAKE THE 5 MINUTE SURVEY

MISSING VOICES

We’re delighted to have received responses from people far and wide across the epilepsy community. But to ensure the UK Epilepsy PSP is truly representative, everyone must have their say. We are currently missing the voices of:
– Men
– Ethnic minorities
– People aged 25 and under

More responses to the UK Epilepsy PSP will build a more complete picture of the priorities of the epilepsy community, which will provide better evidence of need to convince funders to invest in the research the epilepsy community deserves.

We need your help – if you know of anyone who would like to share their priorities for epilepsy research, please forward this email to them.

Take the UK Epilepsy PSP survey today and help us drive change in 2022.

TAKE THE 5 MINUTE SURVEY