Jill was just 41 when she passed away one night after enduring several seizures in succession. Her husband and son tried in vain to save her, as did the paramedics. I had to call my parents to tell them their daughter had died… it was singularly the worst night of my life. Words cannot explain how we all felt in the days following, it seemed like we were looking through someone else’s window, things like that don’t happen to us… But sadly it was happening.We are a close family, Jill and I were married to brothers so we shared the same family and in-laws and saw each other very often. The impact on both sides of the family was one of total devastation. We have epilepsy on both sides, my sister-in-law has suffered it since she was a young girl and my young nephew was diagnosed a few years ago, the most worrying thing is his seizures seem to mimic how Jill’s were. So this is why we are involved in raising money and awareness, we don’t want this devastation in our family again; we don’t want it to happen to anyone else’s family either.

– Joyce Meads and family, January 2017

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