Getting the right diagnosis for our son wasn’t an easy process. Archer had been making odd movements since he was around four weeks old, mostly when he was falling asleep.
We were told by several health professionals it was startle reflex, even when the movements became more severe and were happening without him falling asleep afterwards. After around four weeks of Archer’s symptoms becoming more frequent, a doctor finally saw Archer having an episode. We were told four days later that Archer was indeed having epileptic seizures, around 15 per day by this point, and he was admitted to hospital immediately.
We were so scared when we heard his diagnosis. We didn’t really know anything about epilepsy or what was going to happen next. However, we were relieved someone had finally recognised something was wrong and that treatment could begin. We now know that had his epilepsy remained untreated for much longer, it’s quite likely that Archer’s development would have been severely affected.