ERUK-funded researcher Professor Sameer Zuberi featured on BBC Breakfast News over the weekend to discuss vCreate Neuro – a secure video sharing platform for patients or carers and healthcare professionals. Epilepsy Research UK recently funded an urgent Innovations in Healthcare study led by Professor Zuberi to assess how vCreate Neuro will improve epilepsy care. We are delighted to have played a part in supporting this vital work, which has the potential to make a huge positive impactful for people living with epilepsy and their families.

What is vCreate Neuro?

vCreate Neuro is a secure cloud-based video transfer and management platform designed and piloted by Professor Sameer Zuberi at the University of Glasgow, in partnership with vCreate. For patients and families affected by epilepsy, they are able to upload a video of a seizure and answer a series of questions providing important information to help a clinician assess the video. The clinician can then classify the video and communicate directly with the family through the platform.

What does it mean for people living with epilepsy, and their families?

The platform has recently reached the milestones of having supported over 2,000 families and 5,000 videos of potential seizures have been assessed by healthcare professionals. Among those who have used vCreate Neuro is Epilepsy Research UK supporter Amanda, who was also interviewed by BBC Breakfast News. Her son Archer started having suspected seizures when he was just four weeks old, which Amanda started to record and share via the platform with their clinician, Professor Zuberi. Amanda now knows what type of epilepsy Archer has and his seizures have been brought under control with antiepileptic medication.

You can watch Professor Sameer Zuberi and Amanda’s interview on BBC Breakfast here.

How is Epilepsy Research UK helping to develop the vCreate Neuro platform?

Professor Zuberi’s ERUK-funded Innovations in Healthcare project is now assessing how this video platform has improved services in 15 hospitals across Scotland and England. His team are currently collating evidence to show that the platform has the potential to vastly improve diagnosis and care for people with epilepsy.

“Finding ways to harness the everyday technologies of patients and their carers to improve epilepsy care will empower patients, make them feel more connected to their clinical teams and, in turn, allow those teams to be more responsive to their patients. Better, more accurate data will reduce harm from misdiagnosis, inappropriate tests and medication.”
Professor Sameer Zuberi

Epilepsy Research UK’s funding will also enable this research to go one step further and begin the process of testing whether smartphone videos can be used to develop machine learning programmes to allow automated diagnosis of epilepsy. This could have a significant international impact on epilepsy diagnosis, particularly in remote and resource-poor parts of the world.

You can read more about his project and what it means for people living with epilepsy in Professor Zuberi’s Research Blog here.