Today we are supporting #SUDEPActionDay2020 and reflecting that lives are not only interrupted by epilepsy, but sometimes tragically lost. We’re joining our charity partners SUDEP Action and calling on the epilepsy community to encourage vital conversations on epilepsy risks and SUDEP.
To mark SUDEP Action Day, Epilepsy Research UK held a Research Roundtable webinar on SUDEP with ex-WSJ journalist and Asia Matters podcast host Andrew Peaple, and ERUK Endeavour Project Grantholders, Dr Susan Duncan and Dr Amol Bhandare. Andrew hosted the session and shared his experiences of losing his sister Claire to SUDEP at the age of just 25. The researchers explained what SUDEP is, what we know about the cellular mechanisms that cause it, and shared recent research into epilepsy-related deaths.
You can watch the full session here: