What is the Valproate Stakeholder’ Network?
ERUK has played an active role in the Valproate Stakeholders’ Network (VSN) since it was formed in January 2016 to help raise awareness of the risks of valproate for women. The VSN consists of staff from the MHRA, healthcare professionals, representatives of charities such as ERUK, Young Epilepsy, Epilepsy Action, Epilepsy Society, OACS, FACS Aware, INFACT, and most importantly, patient representatives, who have been affected by the drug. Last week the VSN held a meeting at the Medicines & Healthcare Regulatory Authority (MHRA) headquarters to discuss the progress of the PPP which was introduced in 2018.
All present at the meeting agreed, that whilst progress was being made, there is still some way to go. Preliminary survey results on the effectiveness of the PPP were shared, with the final results due for publication in the coming months. Many attendees called for more research, such as the work conducted by Dr Rebecca Bromley and colleagues at the University of Manchester.