UK Epilepsy PSP
On Monday, Epilepsy Research UK announced the launch of a James Lind Alliance (JLA) Priority Setting Partnership (PSP) to establish the future research priorities of epilepsy in the UK. This Partnership will bring together clinicians, patient groups and people affected by epilepsy to identify and prioritise areas of healthcare that can be improved by research. Leading UK epilepsy charities Epilepsy Action, Young Epilepsy, SUDEP Action, Epilepsy Society and Epilepsy Research UK will work together to oversee this milestone investigation into the priorities of people living with epilepsy.
What do the Canadian findings mean for the UK Epilepsy PSP?
We will now be able to learn from the experiences and findings of the Canadian Epilepsy PSP, and use them to accelerate our own efforts and inform how we will structure the survey. There are many differences between the clinical management of people with epilepsy in the UK and in Canada, and so we anticipate differences in the priorities also.
You can read more about the UK Epilepsy Priority Setting Partnership here.