HAVE YOUR SAY – SHAPE EPILEPSY RESEARCH NETWORK

If your life has been interrupted by epilepsy – you can shape the future of research.

We want to build the biggest ever community of people living with epilepsy to influence and shape research.

Your involvement today is vital in helping us to unlock further progress. Your involvement will help us build relationships that will result in greater investment. Your involvement will help us gather the evidence we need to call on the government to do more. Your involvement will speed up progress to stop the interruption epilepsy has on your life.

To get things started, we’d like you to complete this short questionnaire. We’ve worked with the wonderful Epilepsy Nurses Association to put together a few questions that will give us some insights into your priorities as someone living with epilepsy. There are four questions, which should only take a few minutes to complete. We would just like to reassure you, we will never share your data. You can read our Privacy Policy here.

HAVE YOUR SAY QUESTIONNAIRE

  • AS THE LEADING RESEARCH CHARITY FOR EPILEPSY, WHAT PROPORTION OF FUNDS SHOULD WE ALLOCATE TO:
  • Please enter a number from 0 to 99.
  • Please enter a number from 0 to 99.
Register With Your Email Address
  • If you are interested in joining the 'Shape Epilepsy Research Network' please select here
  • Opt in for updates on this campaign and other ERUK news here
Or Register Using Social Media
  • If you are interested in joining the 'Shape Epilepsy Research Network' please select here
  • To stay informed about research in the areas you have selected and other ERUK news, please grant us permission to contact you by opting in here.

What happens next?

The information you provide will help us to build our SHAPE EPILEPSY RESEARCH NETWORK. Once you’ve completed the questionnaire, you can then decide if you’d like to get more involved.

Our plan is to include people with epilepsy in all aspects of research, from identifying and evidencing research priorities that will have the greatest impact for people living with the condition, to making decisions on the projects we fund.

This is important because:

  • Only by involving people living with epilepsy can we ensure we are funding research that matters most to the people affected
  • Building a strong and engaged community group will help us to build productive relationships with research organisations and accelerate the development of new treatments
  • It will enable us to generate evidence to use to lobby government for increased research investment

You can shape the future of research into epilepsy

The SHAPE EPILEPSY RESEARCH NETWORK will bring together everyone committed to working towards a life free from epilepsy – from people living with the condition, to scientists and clinicians driving innovations and making discoveries. As part of the network, you can help shape research by:

  • Sharing the impact of the condition on your life
  • Helping ERUK choose the best research to fund
  • Planning and prioritising research areas to focus on
  • Using your experiences to support research development by informing study design and implementation

As a member of the SHAPE EPILEPSY RESEARCH NETWORK, we will ask you for your views and feedback on research through questionnaires and focus groups. You will also receive personalised emails about recent epilepsy research relevant to you, as well as upcoming research events and advance notice of opportunities for involvement in clinical trials or studies.

Together, we will create a connected and powerful network of people, who will drive and enable life changing, life saving research into epilepsy.

A life free from epilepsy is possible. But only through research.