Choosing to have surgery in an attempt to control my epilepsy was a scary decision my family had to make, but little did we know how life changing it would be. Thanks to ground-breaking research, 11 years later I am still seizure-free and living a life free from epilepsy.
I was only seven years old at the time, so I don’t recall things too clearly – everything is rather fuzzy pre-surgery. I started off at a local NHS hospital, but my epilepsy was so severe that I was referred to Professor Helen Cross OBE, the leading epilepsy consultant at Great Ormond Street Hospital (GOSH). I had lots of tests every few weeks, if not days, and GOSH is where I met the most incredible staff and doctors.
On the day of the surgery, I remember feeling very tired and lethargic as I was still having seizures in my sleep during the night. Because I had very little idea as to what was going on, I was feeling very scared, so I clung to my parents as much as possible. That is the last moment I can recall – the rest is a blur.