I was in my bedroom when the first seizure happened in August last year. It was around 6.00 am, my son had come in for his usual cuddle and the seizure happened while he was in my arms. My wife was there to see it all.
The initial incident was followed by a cluster of seizures and I was taken by ambulance to the hospital for emergency treatment. The results for the CT scan, MRI scan, and EEGs all came back appearing normal. They ruled out a brain tumour or any vascular causes, then followed around six or seven months of trying various antiepileptic medications. Eleven months later and there are still many questions to answer. The cause and triggers are still unknown, and I haven’t found a medication that works effectively.
I’ve realised I knew relatively little about epilepsy. Like many people, I mostly associated it with photosensitivity. Through my work as a physiotherapist and playing rugby when I was younger, I had encountered the condition before. I’ve known players who have had to retire due to epilepsy and I’ve since learned that other people I was at school with have also been diagnosed. Epilepsy is certainly more common than many people realise. Despite all this, I didn’t ever really expect it would arise later in my life.