As for my hopes for future research into epilepsy, I’d like to see more research into the causes of the condition, looking more at the brain and why the condition arises in the first place. I still do not know what caused my own epilepsy.
Finding new forms of treatment which are not just shoving more chemicals into your body, and with fewer side effects, would also be brilliant. I currently take sodium valproate and neurologists are very careful at advising me I cannot get pregnant while taking this medication. It would be nice not to have to think about these things already, but of course, I have to.
I’ve been fortunate to grow up in a very accepting and supportive circus community. We can all discuss epilepsy, and even joke about it, but it’s all done in a caring and understanding way.
Find a support network that works for you and don’t let epilepsy define you. I’m Hannah; epilepsy is a part of me and it always will be, but epilepsy isn’t all of me.
Epilepsy interrupts the lives of ordinary, extraordinary people, just like Hannah. It’s invisible, it’s unpredictable, it’s frightening.
A life free from epilepsy is possible. But only through research.
Thank you for your continued support.