Alexandra is the mother of Beatrice, who very sadly passed away due to SUDEP in July 2019. Here she talks about Beatrice’s life after being diagnosed with epilepsy and why she believes families should be made aware of the reality of SUDEP.
Caroline is an epilepsy support group leader and surfer living in Plymouth. In this interview, she discusses living with epilepsy, her love for the outdoors, and the ways in which she is helping others in the south-west living with the condition.
Mark is one of the UK’s only firefighters living with epilepsy. We caught up with him for a wide-ranging conversation covering his love for the outdoors, coming to terms with the diagnosis as a teenager, and breaking down barriers for others.
Claire is a long-term ERUK supporter who lives with epilepsy. She is the owner of a vegan and cruelty-free boutique call The Healing Hut, and kindly makes regular donations to our work from sales through her business.
I enjoy photographing the detail of the world around me in a style I call ‘Ministract’ because sometimes the pictures are minimal, sometimes they’re abstract, and sometimes they’re somewhere in between.
To mark the start of the 'Tour de ERUK', we spoke to former World Champion cyclist and Tour De France stage winner Marion Clignet. With over 300 victories, including stage wins in Tour de France, Marion shared her journey to becoming the French World Cycling Champion, despite being diagnosed with epilepsy at 22.
Nelle is a musician living in southeast London, originally from Liverpool. She has experienced the effects of epilepsy for as long as she can remember and was diagnosed with temporal lobe epilepsy aged 16.
Thanks to a breakthrough in research, brain surgeons advised they were confident a piece of tissue could be removed from Rachel’s brain and her seizures would likely stop. The news was met with a mixed reaction of hope, excitement, but also fear from the family.
Oliver underwent surgery in the summer of 2018 to help control his seizures. His father Steve has kindly shared their story: "Oliver’s condition was first noticed when he was at nursery, where they thought that his behaviour was attention seeking."
Anna is a qualified sports coach and teaches PE to primary school children. At the age of 24, she suffered a head injury when her car was hit by a careless driver, and she developed epilepsy as a result.
Tom ‘Moose’ died unexpectedly this summer age 29, having lived with epilepsy since he was 10. His mother, Lee, and friend and colleague, Mike, talk about Tom’s life and the enormous positive impact he had on all those who knew him.
Alice and James’ son, Arthur, was born with an underdeveloped brain, and epilepsy that couldn’t be controlled. Here Alice talks about Arthur’s bravery in life, and their drive to fundraise for research in his memory.