Your Stories

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Your Stories2019-11-28T11:38:17+00:00

It is the very personal accounts from our supporters that drive our collective sense of purpose. Thank you for sharing them, thank you for supporting us and thank you for being part of this powerful community working together to achieve a life free from epilepsy.


Thanks to a breakthrough in research, brain surgeons advised they were confident a piece of tissue could be removed from Rachel’s brain and her seizures would likely stop. The news was met with a mixed reaction of hope, excitement, but also fear from the family.


JEAN My aunt was a remarkable woman who endured many challenges in her life with unwavering strength, love and humour. Jean left ERUK a significant gift in her Will in 2019. In [...]


Carolyn has lived with epilepsy since her teenage years. She is a retired biochemist who specialised in immunochemistry and trace element analysis.


CELINE We are very happy to have been involved with support for the ERUK Céline Newman Prize for Epilepsy Research “Céline took a lot, but she gave back so much more. With her [...]

Sam C

SAM C Someone once said to me that life carries on but that you watch it go by through plate glass Christine lost her daughter to epilepsy. As she says “Someone once said to me [...]


OLIVER'S JOURNEY   The surgeons have done an amazing job at Kings Hospital and Oliver has no side effects Oliver underwent surgery in the summer of 2018 to help control his sei [...]


HAMSIA Living with Epilepsy Life doesn’t stop because you have a seizure Hamsia, 29, was diagnosed with epilepsy at the age of 17. For years she couldn’t accept her condition, [...]


ADELE-MARIE Raising money and awareness for ERUK Not enough people are aware of the different forms and seriousness of epilepsy Adele-Marie, along with family and friends is ra [...]


NELLE Musician I have had symptoms of temporal lobe epilepsy as far back as I can remember Nelle, a musician, believes that her epilepsy has contributed to her creativity. She [...]


ANNA Qualified sports coach   I have now been two years seizure free but I have still got all the emotional and memory issues Anna is a qualified sports coach and teaches PE to [...]


TOM Neuroscientist at University College London I am very lucky in that 90% of the time I can forget that I have epilepsy. Until that changes I will most likely maintain my treat [...]


EMMA I was about 10 when I was diagnosed with epilepsy after having had two seizures Emma was diagnosed with epilepsy at about 10 years of age, and after trialing one drug she [...]


DAVE I wasn’t diagnosed with epilepsy until I was 18, which is when I had my first seizure Dave was diagnosed with epilepsy at the age of 18. Although his seizures are controll [...]


DAVID David's first seizure happened several months after a head injury sustained from a collision with a tree when out running one morning David died of SUDEP when he was just [...]


PAUL Driving Again To anyone else in a similar situation I would say don’t give up, and don’t be afraid to ask your consultant for assistance Paul, 51, was diagnosed with epile [...]


SUE Living with Epilepsy You’ll be alright, you’ll feel better soon - is what my mum was told Sue’s mother has had epilepsy since childhood, but it wasn’t diagnosed until she w [...]


SIOBHAN Diagnosed With West Syndrome It was frightening but thrilling to achieve something I didn’t think I’d have the nerve to do Siobhan has recently done a skydive for Epile [...]


MARGARET Interior Designer Margaret was diagnosed with epilepsy in 2006 at the age of 56 Margaret, a former nurse, developed epilepsy when she was in her fifties. Her memory ha [...]


MARK Quality Manager, Keen Sportsman & SCUBA Instructor Research into epilepsy is the only way that things will get better for those who live with it Mark, 42, works as a Q [...]


AMY Statistics Consultant I hope that research will one day lead to a more personalised approach to treatment as epilepsy is different for everyone. Amy has had epilepsy since [...]


STUART Living with Epilepsy I believe research is the way to improve the lives of those with epilepsy Stuart, 61, was diagnosed with migraine-induced epilepsy at the age of 56. [...]

Sam P

SAM P Raising awareness of epilepsy is important as it does not get the profile that it should.  And research is vital to finding out what causes epilepsy and how to treat it. [...]


ANDREW Retired Secondary School Teacher During the decades that followed Pam and I had a family of three beautiful girls who have all gone onto have families of their own Andre [...]


JOAN Successful Kitchen Designer “I felt it coming on. I knew I was going to have one and would try to fight it  …. but you can’t Joan, a successful kitchen designer, comes fro [...]

At a reception held on May 20th at the Royal Society to launch National Epilepsy Week, we announced grant funding of over £1 million across ten research projects all over the UK.

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What an amazing day Team ERUK had at the 2019 London Marathon. 14 amazing runners taking on this iconic challenge for Epilepsy Research UK and a fantastic cheering squad

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Do something amazing today and make a donation. Your money will go to support the pioneering research projects which help and support people with epilepsy

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