#ALifeInterrupted

Epilepsy interrupts the lives of ordinary, extraordinary people.
It’s invisible. It’s unpredictable. It’s frightening.

A life free from epilepsy is possible.
But
only through research.

Our #ALifeInterrupted campaign seeks to highlight the disruptive, interruptive impact of epilepsy, address the inequalities in research funding and calls on people affected by epilepsy to shape the future of research.

DR RHYS THOMAS ON #ALifeInterrupted

ERUK Trustee Dr Rhys Thomas is a Consultant Neurologist and Epilepsy Neuroscientist based in Newcastle, and is leading on the development of our SHAPE EPILEPSY RESEARCH NETWORK. Here he provides a personal account of why the #ALifeInterrupted campaign is so important for everyone affected by epilepsy.

“Epilepsy is common, and seizures interrupt lives. Seizures can strike on any day, from your first day to your last. They do not respect birthdays or wedding days, first dates or crucial exams. Unlike other common neurological disorders, epilepsy research is drastically underfunded at a national level…”

READ THE FULL BLOG HERE

READ THE REPORT

Our ‘Shaping the Future of Research into Epilepsy’ report highlights alarming inequalities in research funding and calls on people with epilepsy to take action now to shape the future of research.

The figures uncovered in this report are stark; research into epilepsy is chronically underfunded and lags behind other neurological conditions affecting far smaller patient populations. Read the full findings and our action plan here.

DOWNLOAD THE REPORT
VIEW THE REPORT

HAVE YOUR SAY QUESTIONNAIRE

If your life has been interrupted by epilepsy, you can shape the future of research.

If you are living with epilepsy your involvement today is vital in helping us to unlock further progress. Your involvement will help us build relationships that will result in greater investment. Your involvement will help us gather the evidence we need to call on the government to do more. Your involvement will speed up progress to stop the interruption epilepsy has on your life.

SHAPE EPILPESY RESEARCH HERE

DOWNLOAD THE RESOURCES

We’ve gathered all the resources you need to help spread the word – everything from the report and films, to twibbons and tiles, and so much more…
Thank you for supporting #ALifeInterrupted campaign.

CAMPAIGN RESOURCES

PLEDGE YOUR SUPPORT

“I’m pledging my support for the #ALifeInterrupted campaign because…”

This campaign seeks to highlight the disruptive, interruptive impact of epilepsy, address the inequalities in research funding and calls on people affected by epilepsy to shape the future of research. Will you pledge your support?

PLEDGE HERE

YOUR STORIES

There are so many ordinary, extraordinary people whose lives are interrupted by epilepsy. Here are some of their stories.

“If it wasn’t for the quick actions of the paramedics and my husband, who steered the car I was driving into the hard shoulder, I may not be here now.”

READ MORE HERE

“After years of sporadic seizures and countless hospital visits, I was finally diagnosed with tonic-clonic epilepsy. I was still in denial and refused to accept I had epilepsy; I kept it hidden like a monster I refused to let out.”

READ MORE HERE

“I was diagnosed after suffering my first seizure whilst getting ready for my first “lads” holiday. As someone who was just finishing with school, meeting girls and doing all the things teenage lads do, I thought my life was over.”

READ MORE HERE